Genetics

The Genetics Clinic Family Advisory Committee

The Genetics Clinic Family Advisory Committee is composed of families with extensive experience in the Texas Children’s Genetics Clinic and our staff genetic counselors.

The advisory committee’s mission is to support medical care that is focused on our patients and their families. We seek to do this by providing caregiving and support guidance and upholding the Genetics Clinic’s specific strategic initiatives.

Our vision includes these efforts:

• Fostering and supporting partnerships between Texas Children’s Genetics Clinic, its patients, families and staff
• Gathering input on areas of improvement and ways to enhance the clinic experience
• Developing innovative solutions to challenges that best support the needs of patients and families
• Collaborating with parents and caregivers who have firsthand experience with Genetics Clinic services on specific programs

Our Outreach Efforts

Genetics Clinic outreach includes:

• Our quarterly advisory committee meeting is held virtually via Microsoft Teams. We occasionally hold in-person meetings and events as well.
• A Genetics Clinic library consists of books relevant to the educational and support needs of patients and family members, which are shared with our patients by their providers during Genetics Clinic appointments.
• Our newsletter shares important clinic information, highlights staff members and features stories from families. Read some of our previous Genetics Clinic newsletters below.

Let’s Connect

If you’re interested in joining the advisory committee, please reach out to pfengagement@texaschildrens.org. 

Sign up for the Genetics Clinic email to receive our informative newsletters and future announcements by following this link: https://forms.office.com/r/TmMuvWzdqX

Learn more about Texas Children’s commitment to involving families in patient care at our Patient and Family Engagement’s website.

We look forward to hearing from you and to sharing our program highlights with you.