Texas Children’s Highlights Global Impact and Innovation During 2026 World Sickle Cell Day Event

On June 24, Texas Children’s Cancer and Hematology Center brought together clinicians, researchers, patients and families for its 2026 World Sickle Cell Day event, highlighting ongoing efforts to advance sickle cell disease care, research and education locally and around the world.

Held at Texas Children’s Hospital, the event showcased the Center’s comprehensive approach to improving outcomes for individuals and families affected by sickle cell disease while emphasizing the importance of collaboration in addressing one of the world’s most common inherited blood disorders.

The program opened with remarks from Titilope Fasipe, MD, PhD, who reflected on the significance of World Sickle Cell Day and emphasized the importance of ongoing education and advocacy in supporting individuals and families affected by sickle cell disease. Jennifer Sanders, DNP, RN, NEA-BC, Vice President of Texas Children's Cancer and Hematology Center, then highlighted the institution's commitment to advancing sickle cell awareness through innovative patient care, research and education.

The event also featured presentations focused on the growing global impact of Texas Children’s sickle cell initiatives. Venée Tubman, MD, MMSc, shared how the Center’s sickle cell program has evolved from a strong regional clinical service into a global leader supporting patients and collaborating with partners across multiple countries. Dr. Tubman highlighted the urgent need for earlier diagnosis and improved access to care, particularly in resource-limited settings where many children with sickle cell disease remain undiagnosed or lack access to life-saving treatment.

Research and innovation were another key focus of the program. Alexis Wilkinson, a PhD candidate at Rice University, presented ongoing collaborative efforts aimed at expanding newborn screening programs, training community health workers and supporting sustainable models of sickle cell care across Africa.

Wilkinson also discussed the development of a rapid, non-invasive point-of-care genetic test known as SCD-RPA. Designed specifically for low-resource settings, the technology could help enable faster diagnosis and strengthen screening efforts in areas where access to laboratory infrastructure remains limited.

The event concluded with recognition of community partners whose continued support helps drive progress in sickle cell care, education and research. Quinn Franklin recognized the organizations that play a critical role in supporting patients and families and helping expand access to resources and services.

Attendees also viewed a patient video commemorating World Sickle Cell Day, providing a meaningful reminder that advances in research and clinical care ultimately serve children and families living with sickle cell disease every day.

The gathering underscored the power of collaboration among healthcare providers, researchers, patients, families and community partners. Together, these efforts continue to advance innovative solutions, improve access to care and create a brighter future for individuals affected by sickle cell disease.