On World Sickle Cell Day, Saniya’s Story Highlights Strength, Community and Compassionate Care

At 17 years old, Saniya is navigating sickle cell disease while excelling in school and even taking college-level courses — all while maintaining a positive outlook that uplifts those around her. On World Sickle Cell Day, her story reflects the resilience seen in so many adolescents living with serious blood disorders.

Despite the challenges that can come with sickle cell disease, Saniya continues to push forward academically and personally. Those around her describe someone who not only perseveres, but encourages others to keep going as well — an outlook she has carried with her throughout her journey.

Finding Community and Connection

Outside of school, Saniya enjoys makeup and arts and crafts — creative outlets that allow her to express herself and connect with others. Her experiences with teen-focused programs for sickle cell disease have been just as meaningful.

She credits the CRU Teen Group, Camp Periwinkle and Camp Cell-A-Bration as life-changing experiences where she found a true sense of belonging.

“Camp was the best thing to happen to me,” Saniya shared. “I found a family and a sense of community. It’s an experience you will cherish and never forget. I met so many amazing people.”

These programs offered more than activities — they created space for friendship, understanding and shared experiences that continue to shape her perspective.

Creating Lasting Memories

Another milestone in Saniya’s journey came through the Make-A-Wish Foundation, which granted her a birthday trip to Disney. The experience gave her and her family the opportunity to step away from the routine of care and focus on joy and celebration.

“I had the best time,” she said. “I made so many great memories, and it was a great birthday celebration for me also. I am forever grateful for the Make-A-Wish Foundation.”

Moments like these play an important role in helping patients and families create meaningful memories beyond the hospital setting.

Support at Every Step

Throughout her journey, Saniya has been supported by a multidisciplinary care team, including Timesha L. Edwards, PA-C (pictured L); Titilope Fasipe, MD, PhD (pictured R); and Chelsea Tobin, PhD, along with a broader team dedicated to her care.

For her mom, Sandra, that support has made a lasting impact.

“Our experience with the Texas Children's Cancer and Hematology Center has been incredible,” she shared. “From the very beginning, we have been treated like family. We have always felt heard, valued, and understood.”

She describes a care environment built on trust, communication and genuine concern—one that has helped guide their family through every stage of her care.

Looking Ahead

Through it all, Saniya continues to share a message of perseverance with others facing similar challenges.

“Keep pushing,” she said. “You aren’t your illness and your situation is temporary — better days are coming!!”

On World Sickle Cell Day, her story serves as a reminder that while sickle cell disease presents ongoing challenges, it does not define the individuals living with it. With strong support systems, meaningful community connections and compassionate care, young people like Saniya continue to thrive.

The Sickle Cell and Thalassemia Program at Texas Children’s Cancer and Hematology Center provides comprehensive, family-centered care for more than 1,300 children with complex blood disorders, offering advanced therapies and access to clinical trials. With a multidisciplinary team, the program integrates medical and psychosocial support to deliver coordinated, lifelong care. Learn more about the program here.