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ILD and Rare Lung Diseases
Interstitial lung disease is a general diagnostic term for a group of rare respiratory disorders that can affect infants, children, adolescents and adults. The causes for these diseases vary from genetic inheritance to acquired lung injury. They usually manifest as diffuse lung disease in imaging, decreased oxygen level and an abnormal respiratory pattern with fast or labored breathing on physical examination.
The Rare and Interstitial Lung Disease Program at Texas Children's Hospital consists of a multidisciplinary team of expert physicians, nurses, social workers, dietitians, pharmacists, physical and occupational therapists dedicated to the care of children with these complex and often severe diseases. We have one of the oldest Interstitial Lung Disease programs in the country and are recognized nationally and internationally as a top center for the care of rare respiratory diseases.
Our team specializes in the evaluation and treatment of complex, chronic and rare pulmonary disorders, and our goal is to give your child the best care possible. We are experts in pediatric interstitial lung disease, including lung disease related to bone marrow transplant, immunologic disorders and rheumatologic and immunologic conditions, and we have a state-of-the-art facility, as well as specialists in critical care medicine, radiology, diagnostic imaging, pathology, pulmonary hypertension and, if needed, lung transplantation. We also have a pulmonary diagnostic lab team thoroughly trained in diagnostic testing and pulmonary education.
We are members of the Children’s Interstitial Lung Disease Research Network (chILDRN) and are affiliated with the Children’s Interstitial Lung Disease Foundation (chILD Foundation).
Depending on the needs of the patient, our multidisciplinary team includes Pulmonology, Radiology, Pathology, Rheumatology, Immunology, Surgery, Genetics and Hematology/Oncology, who work together to provide a comprehensive evaluation, diagnosis and treatment plan for each patient.