The Cancer Genetics Clinic at Texas Children’s Hospital is led by a world renowned medical geneticist who works closely with a team of genetic counselors to provide services including, but not limited to:
Clinical evaluation for genetic disorders
Cancer Risk assessment
Genetic counseling and education
Recommendations for appropriate genetic testing
Recommendations for how to minimize risk of future cancers including appropriate screening tests
Who does the Cancer Genetics Clinic serve?
We provide genetic services to children who already have cancer or family members who are at risk of developing cancer. Here are some reasons that a child might be referred to our clinic for a cancer genetics evaluation:
Diagnosis of a cancer that typically is not found in children, for example a child being diagnosed with a cancer usually found in adults.
Some types of childhood cancer that are associated with a high risk of being due to a genetic disorder, for example retinoblastoma.
A family history of cancer that suggests the child might be at increased risk of developing cancer in childhood.
Certain medical problems (i.e., unusual birthmarks, colon polyps, eye findings) that may be suggestive of a cancer risk.
What should I do to prepare for a Cancer Genetics Clinic visit?
You may be called prior to the clinic visit by a genetic counselor or staff member to gather types of information that will make the visit more efficient:
Reports of any prior genetic testing of the child or close relatives
Family history of cancer information including the type of cancer and age when diagnosed in siblings, parents, grandparents and other relatives.
Medical records including pathology reports that describe any cancer in the family.
In addition to collecting family history information, spend some time to review your understanding of the Cancer Genetics Clinic and create a list of any questions you have.
What will happen during my first Cancer Genetics Clinic visit?
The child’s first visit will generally include:
Physical exam
Review of medical and family history and any records you provide
Discussion of genetics and risks of cancer
Genetic testing recommendations if applicable. The testing is usually done by sending a blood sample to a genetics testing laboratory.
Note, testing is often not sent on the first visit due to insurance preauthorization requirements (see below)
Will insurance cover services provided by the Cancer Genetics Clinic?
The genetic evaluation is generally covered like other types of visits with medical specialists with regard to co-pays and approvals.
Insurance policies differ widely on coverage of genetic testing. Prior to genetic testing being completed, you will receive information regarding coverage and cost of genetic testing specific to your plan.
Again, genetic testing is often not sent off at your first clinic visit as many insurance companies require the genetics visit and notes prior to approving testing
