Beginning CF Care: For Parents of Childrens with Cystic Fibrosis This 50-page document was written to help parents begin to understand CF and manage their child’s illness.
Glossary of Cystic Fibrosis Terms One of the most challenging parts of becoming the parent of a child with CF is learning all the medical terms related to the condition. This 28-page document will help parents learn and better understand everything from abdomen to zinc.
Working with your Insurance Company This helpful handout will help parents of children with cystic fibrosis work with their CF care center and insurance company.
Giving a Child with Cystic Fibrosis Medicine How parents give medicine to children with CF depends on the type of medicine and the age of the child. Here are some hints.
Who to Call or Visit This worksheet helps parents decide what they should do in a variety of situations related to caring for a child with cystic fibrosis.
My Child’s Usual Gastrointestinal (GI) Symptoms Use this form to record your child’s usual CF gastrointestinal symptoms. Any increase in these symptoms may suggest that your child has a new or increased intestinal or malabsorption problem.
My Child’s Usual Respiratory Symptoms Use this form to record your child’s usual CF respiratory symptoms. Any increase in these symptoms may suggest that your child has a new or increased respiratory problem.
