Why the long wait for behavioral and developmental evaluations?

July 10, 2018
Why the long wait for behavioral and developmental evaluation? | Texas Children's Hospital
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Imagine taking your 4-year-old daughter to the pediatrician for her well child visit, where you expect to hear the usual “she’s doing great – see you next year!” This time, though, your doctor is throwing out words such as “speech delay,” “unusual behavior” and “lack of eye contact.” Your doctor puts in a referral to developmental pediatrics, telling you to call if you don’t hear anything in the next two weeks.

Most parents are in panic mode at this point, seeking input from family and friends and frantically searching through symptoms and conditions on WebMD. The word “autism” keeps coming up. Two weeks following the day of the well child visit, you call the number you were given and you’re told to fill out some forms in order to be seen in the clinic. You fill out the forms, fax them and wait for your appointment to be scheduled.

A week or two later, you receive a letter explaining how you’ve been added to a waiting list for an evaluation. The approximate wait time is six to nine months – full-blown panic ensues.

These stories are all too common, as access to care is arguably the largest obstacle faced by patient families and developmental-behavioral health providers alike.

New figures from the Centers for Disease Control and Prevention suggest 1 in 59 children are diagnosed with autism spectrum disorder. According to the National Center for Learning Disabilities, as many as 1 in 5 children have learning and attention disorders.

Given this overwhelming prevalence, it’s no wonder why so many families face challenges when searching for treatment. There simply aren’t enough qualified providers to evaluate and treat all of the children and adolescents with developmental, behavioral and emotional disorders. Other factors might include lack of insurance coverage and high out-of-pocket costs, not to mention basic barriers such as limited transportation, busy schedules and so forth. For example, many treatment plans for children’s mental health or behavioral issues will involve a series of weekly therapy sessions. This might be challenging for families already attempting to balance multiple responsibilities at once.

Here at the Meyer Center for Developmental Pediatrics and Autism Center, we undoubtedly recognize and understand the anxiety and stress placed on caregivers who are trying to access developmental-behavioral health services for their children. Fortunately, there are people, places and resources available at your disposal. You can do a handful of things while waiting for your child to be evaluated, such as:

It’s equally important for caregivers to find ways to manage their own stress levels as they fight for their children. Even though long wait times and difficulty finding services are frustrating, we suggest finding a balance between persistence and patience. You’re on the right track – seeking help for your child and doing what you can while you wait.

Post by:

Dinah Godwin, LCSW

I am a Licensed Clinical Social Worker with more than 20 years of experience in clinical care for families of children with developmental disabilities and special health care needs, as well as in grant writing, program development, and community outreach.  My areas of interest include working...

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