Data Science Hub Consortia
The Undiagnosed Diseases Network
The Undiagnosed Diseases Network (UDN) is an NIH-funded study that unites clinical and research experts from across the country to solve the most challenging medical mysteries, better understand disease and the human body, and provide relief to families living with undiagnosed diseases.
The Southwest Pediatric Device Consortium
The Southwest Pediatric Device Consortium (SWPDC) is an FDA grant-supported free, no-strings-attached virtual accelerator that funds pediatric device innovators nationwide. Texas Children’s Hospital/Baylor College of Medicine is one of five SWPDC hubs.
PEDSnet (A Pediatric Learning Health System)
PEDSnet is a large community of hospitals, healthcare organizations, researchers, clinicians, patients, and families who work together to determine and answer the research questions that will best support children’s healing and healthy development.
PCORnet (The National Patient-Centered Clinical Research Network)
PCORnet is a national, integrated research network that unites extensive health data, research expertise, and patient partnership to answer difficult research questions that advance public health.
ASH Research Collaborative (Accelerating Progress in Hematology)
ASH Research Collaborative is a data hub of research-grade data that aims to foster scientific collaborations and advance the treatment of hematologic diseases.
USIDnet (The United States Immunodeficiency Network)
USIDnet is a national patient-consented registry and consortium designed to advance research and health outcomes for those with primary immunodeficiencies.
MFMU (Maternal-Fetal Medicine Units Network)
MFMU is a network that incorporates translational research, genetic analysis, and effective new technologies to promote health and prevent disease for mothers and babies during pregnancy, delivery, and in the newborn/postpartum periods. Specifically, this network aims to reduce preterm births, fetal growth abnormalities, newborn morbidity, and pregnancy complications, and to evaluate maternal and fetal interventions for efficacy, safety, and cost-efficiency.
PECARN (Pediatric Emergency Care Applied Research Network)
PECARN is a registry containing de-identified electronic health record data from emergency department visits at participating pediatric and community sites. This data is used to evaluate pediatric emergency care measures, promote health equity, and inform and support research proposals pertaining to pediatric emergency care.