Ewa Elenberg, MD
Dr. Elenberg is a national expert in cystinosis; in 1995 she received Cystinosis Foundation Award: "In rateful Recognition of Special Concern for and Outstanding Service to Children with Cystinosis", in 1998 she was the first to describe eating problems in cystinosis, and in 2009 she received a grant from the Cystinosis Research Network (CRN), to study quality of life in patients with cystinosis. She is currently a PI in multicenter study aimed at testing a new drug for cystinosis that will improve quality of life for patients with cystinosis. Dr Elenberg is interested in education having graduated in December 2011 from the University of Texas with Master in Education degree. This degree increased her knowledge and skills in teaching. She had given multiple letures on Cystinosis on national and international level. In 2011 she received Fulbright & Jaworski L. L. P. Faculty Excellence Award from Baylor College of Medicine, in the category of Teaching and Evaluation.
• End Stage Renal Disease / chronic dialysis
• Kidney Transplantation
• Clinical trials
Opina AD, Qureshi AM, Brewer E, Elenberg E, Swartz S, Michael M, Justino H. Intra-procedural continuous dialysis to facilitate interventional catheterization in pediatric patients with severe renal failure. Catheterization Cardiovascular Interventions 90(5):784-9, PubMed PMID: 28699323, 2017.
Bekheirnia MR, Michael M, Brewer ED, Elenberg E, Swartz SJ, Srivaths PR, Wenderfer SE, et al. Whole-exome sequencing in the molecular diagnosis of individuals with congenital anomalies of the kidney and urinary tract and identification of a new causative gene. Genetic Medicine 19(4):412-20, PubMed: PMC5362362, 2016.
Langman CB, Greenbaum LA, Grimm P, Sarwal M, Niaudet P, Deschenes G, Elenberg E, et al. "Quality of life is improved and kidney function preserved in patients with nephropathic cystinosis treated for 2 years with delayed-release cysteamine bitartrate." Journal of Pediatrics 165(3):528-33. Pubmed: PMC4181581, 2014.
Emma F, Nesterova G, Langman C, Labbé A, Cherqui S, Goodyer P, Elenberg E, et al. "Nephropathic cystinosis: an international consensus document." Nephrology Dialysis Transplantation 29(Suppl 4): 87-94. Pubmed: PMC4158338, 2014.
Nasseri F, Hunter JV, Elenberg E, Muscal E. "A Unique Case of Intraventricular Hemorrhage Associated With Posterior Reversible Encephalopathy Syndrome in an Adolescent. Journal of Child Neurology27(8):1048-51, Pubmed PMID: 22290853, 2012.
ViiCTR Profile: https://profiles.viictr.org/display/BCM/ewa-elenberg
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