The Children’s Oncology Group (COG) developed guidelines for management of late effects of treatment for childhood cancer. These guidelines provide a means of anticipating potential health problems related to specific cancer diagnoses and treatment modalities and dosages. The long-term guidelines represent an excellent resource; and the Texas Children’s Cancer Center partnered with the Children's Oncology Group to create and deploy the Passport for Care Clinician Website. The Passport for Care Clinician Website allows pediatric oncology caregivers, with survivor permission, to enter into a secure database details of the specific types and scope of cancer treatments that the survivor received. A guideline-based algorithm then automatically generates specific information on risks for late effects from childhood cancer and recommendations for screening and follow-up to manage risks. This information can be shared with other care providers, including primary and specialty care providers. The Passport for Care Clinician Website has already been adopted by over 130 childhood cancer centers nationally and abroad, with another 100 preparing for adoption. Treatment histories on over 27,000 survivors have been entered into the Passport for Care.
However, the Passport for Care Clinician Website addresses only part of the need. In order for guideline-based follow-up care to be available to childhood cancer survivors over their lifespan, information on treatment histories, risks from late effects, and strategies for managing risks must be available to survivors directly so that they can share it with healthcare providers. The Passport for Care Survivor Website was developed to give the survivors access to the information they need in a form that will be accessible with computers and mobile devices and empower them to be actively engaged in their own follow-up care.
Survivor Website User Guides
- Passport for Care Clinician Guide (YouTube) — prepared for physicians; describes the Survivor Website, how it is used and what it offers the survivor
To learn more about the Passport for Care® Clinician Website, please contact Marc E. Horowitz, MD, (firstname.lastname@example.org) or Susan Krause, (email@example.com). Connect with the Passport For Care on social media. Like us on Facebook and follow us on Twitter.