What Parents Should Know About Non-Idiopathic Scoliosis in Children Signs Your Child May Have a Spinal Condition

Most people have heard of scoliosis — a side-to-side curve in the spine that often shows up during the preteen years. But some children have a different kind of scoliosis caused by other health problems. This is called non-idiopathic scoliosis, and it often needs special care.

What is non-idiopathic scoliosis?

Non-idiopathic scoliosis means the spine curves because of another condition. This might include:

• Congenital scoliosis, which is present at birth
• Neuromuscular disorders like cerebral palsy or spinal muscular atrophy
• Some genetic conditions, like Marfan syndrome

These non-idiopathic spine problems often become apparent earlier than typical scoliosis. Some children are diagnosed as young as 2 or 3, although many are found around ages 7 or 8.

At Texas Children’s Hospital, doctors treat many children with these more complex spine conditions in our Scoliosis and Spinal Deformity Program. They work closely with families to create a plan that fits each child’s needs and helps them grow and stay healthy.

What signs should parents watch for?

The signs of scoliosis can be easy to miss, especially in children with other medical needs. You might notice your child:

• Leans to one side when sitting
• Has trouble sitting up straight
• Seems uncomfortable sitting for long periods of time 

It’s a good idea to ask your child’s doctor about their spine, especially if your child has other health conditions.

How is it treated?

Texas Children’s uses a team-based approach to care. Doctors from many areas — like bone health, lungs, nutrition and surgery — work together to make a plan that’s safe and effective for your child. 

Often, special seating, braces or body casts can correct or slow down the curve. If surgery is needed, the team tries to time it carefully to align with your child’s growth and development. Tools like specialized rods, called MAGEC rods, can help the spine grow while needing fewer procedures.

Helping families feel supported

At Texas Children’s, families can also get support from social workers who can help connect you to resources, child life experts who help improve your child’s care experience and other parents who’ve been through similar experiences. The goal is to make sure your child — and your whole family — feels supported every step of the way.

Texas Children’s also leads research to find better, safer ways to treat spine problems in kids. Your child may have access to new treatments available only through clinical trials.

Don’t wait to ask questions

If your child has trouble moving, sitting or has a condition that affects their growth, ask your doctor about their spine.

Seeing kids early gives your child more options to help them avoid bigger problems later. Good treatments are available, and we’re here to help. 

Learn more about the Scoliosis and Spinal Deformity Program.