Madison's story

Image

Image

Image

Madison was born with a complex lymphatic anomaly known as CLOVES Syndrome, in which there are only about 150 cases documented worldwide. As a result, her lymphatic system was not built properly, so she has pools of fluid and cysts in her upper body. However, thanks to Dr. Ionela Iacobas and the multi-disciplinary Vascular Anomalies Clinic, Madison is thriving and meeting milestones originally not thought to be possible. Visit the Vascular Anomalies Center for more information.

Blog

• Madison’s story: Battling a vascular malformation

Media Story

• Texas Children's Hospital helps young girl with rare syndrome

Additional Resources

• The Mighty Madison Facebook Page
• Vascular Anomalies Center at Texas Children’s Hospital (Video)

Physicians

• Dr. Ionela Iacobas