20th Annual Chronic Illness and Disability Conference: Transition from Pediatric to Adult-Based Care
October 24-25, 2019
8:00 AM - 4:00 PM
MD Anderson Mitchell Basic Sciences Research Building, Onstead Auditorium
6767 Bertner Avenue
Houston, TX 77030
the Chronic Illness and Disability Conference! CLICK HERE to share your story!
About this Event
Skill preparation and planning for healthcare transition for children and youth with special healthcare needs is inadequate. Less than 50 percent of families nationwide indicate that their children with special healthcare needs have received the services necessary to make appropriate transitions to adult healthcare, work, and independence. One of the major hurdles to receiving this care is the lack of a workforce, including physicians, nurses, social workers, mental health providers and all who provide services to youth and young adults with special healthcare needs trained to provide the services necessary to make the healthcare transition. There is a strong need for physicians to have the knowledge and skills to provide the services needed to facilitate a successful transition from pediatric to adult-based care and services.
Because of increased awareness of transitioning to adult-based care, clinicians are required to update their knowledge of the changing strategies for integrating emerging adult-based care into practice.
For all conference participants, there will be a discussion of the legal issues involved in healthcare transition, as well as time to meet and talk with faculty in small groups, to exchange ideas among participants, and to share knowledge and information about how best to plan for a successful transition to adulthood.
- Physician: $350
- Nurse: $225
- Social Worker: $225
- Other Healthcare Professional: $225
- BCM Faculty Member: $175
- Medical Student: $50
- Fellow: $50
- Resident: $50
- Youth: $125
- Family Member: $125
7:00 a.m. - Registration and Continental Breakfast
7:00 a.m. - Preview of Six Core Elements Update & New - Implementation Guide (not designated for CME) Got Transition, Washington, D.C.
8:00 a.m. - Welcome and Announcements - Albert C. Hergenroeder, MD, Professor of Pediatrics; Chief, Adolescent Medicine and Sports Medicine, Baylor College of Medicine; Chief, Adolescent Medicine Service, Texas Children’s Hospital
8:10 a.m. - David Robinson - Houston City Council, Proclamation
8:15 a.m. - Observations of the field of Health Care Transition and the Transition Conference over 20 years - Albert Hergenroeder, MD
9:00 a.m. - The current state of health care transition from pediatric to adult-based care - Mary Ciccarelli, MD, Professor of Clinical Medicine and Pediatrics, Indiana University School of Medicine
9:45 a.m. - Break
10:00 a.m. - Legal issues in the transition from pediatric to adult-based care - Beth Sufian, JD, Partner at Sufian & Passamano
10:45 a.m. - Policies that promote employment outcomes for young adults with disabilities - Maria Town, President and CEO, American Association of People with Disabilities; Formerly Senior Associate Director and the Disability Community Liaison for the White House Office of Public Engagement; Formerly, U.S. Department of Labor Office of Disability Employment Policy with an emphasis on improving employment outcomes for youth with disabilities; and, Founder of CP Shoes, a blog dedicated to exploring the intersection of design, fashion, disability and technology
11:30 a.m. - Questions and Answers
11:45 p.m. - Lunch
12:00 p.m. - Meet the Faculty Lunch
- Maria Town
- Jacob Zalewski
- Mary Cicarelli
- Robin Rayburn, Gabriella Marshall Mackin, Mary Jane Williams
- Eyal Cohen
- Peggy McManus, Patience White
1:15 p.m. - Breakout Sessions I with Faculty: (attendees select one at 1:15 pm and a different one at 2:15 pm)
- Building a Business to Provide Employment for Young Adults with Special Health Care Needs - Diane Murrell, LCSW, Social Worker, Texas Children’s Hospital. (panel of three business models that serve the disability community with employment) Belong Bakery, Kim Brown; Social Motion, Wendy Dawson; Revive Glory, Rene Parker; The Heart Program, Jane Borochoff
- Policy develo pment - Maria Town, President and CEO, American Association of People wth Disabilities
- Broadcast #1 – Measurement Matters: Transition Program Evaluation - Eyal Cohen, MD, MSc, FRCP(C), Staff Physician, Co-Founder, Complex Care Program, Paediatrics, The Hospital for Sick Children Toronto
- Broadcast #2 Writing Workshop - Chaya Murali, MD, Department of Molecular and Human Genetics, Baylor College of Medicine
- Long term care options for family caregivers of those with IDD - Sophie Jan, MD, Pediatric, Internal Medicine, Northwell Health; John Berens, MD, Assistant Professor, Transition Medicine, Baylor College of Medicine
- Parent session - Robin Rayburn, Gabriella Marshall Mackin, and Mary Jane Williams, Executive Director of Family to Family Network Inc., Houston, Texas
2:15 p.m. - Breakout Sessions II with Faculty
3:00 p.m. - Break
3:15 p.m. - Nutritional issues during transition - Lee Shelly Wallace, EdD, RDN, LDN, FADA, FAND, Chief of Nutrition, Coordinator of Inborn Errors of Metabolism Team, Boling Center for Developmental Disabilities, University of Tennessee Health Science Center
4:00 p.m. - Questions and Answers
4:00 p.m. - Evaluation
4:10 p.m. - Adjourn
Friday, October 25, 2019
7:30 a.m. - Continental Breakfast and Sign In
8:00 a.m. - Announcements - Albert C. Hergenroeder, MD, Professor of Pediatrics; Chief, Adolescent Medicine and Sports Medicine, Baylor College of Medicine; Chief, Adolescent Medicine Service, Texas Children’s Hospital
8:15 a.m. - New therapeutics in pediatric metabolic, bone and other rare diseases - Brendan Lee, MD, PhD, Robert and Janice McNair Endowed Chair in Molecular and Human Genetics, Baylor College of Medicine
9:05 a.m. - Questions and Answers
9:20 a.m. - Young adult perspective - Jacob Zalewski CEO & Founder of One Step Closer Foundation
10:20 a.m. - Questions and Answers
10:35 a.m. - Break
10:50 a.m. - Siblings’ perspective on transition - Miranda Banks, LoneStar LEND trainee and sibling, Olivia Flagor.
11:30 a.m. - Questions and Answers
11:45 a.m. - Lunch
1:00 p.m. - Transitioning Successful Models of Pediatric Complex Care into Adulthood - Eyal Cohen, MD, MSc, FRCP(C), Staff Physician, Co-Founder, Complex Care Program, Paediatrics, The Hospital for Sick Children Toronto
1:45 p.m. - Break
2:00 p.m. - Clinical pathway – Developing a standardized approach to transition across services at a large children’s hospital - Sophie Jan, MD, Pediatric, Internal Medicine, Northwell Health
2:45 p.m. - A successful transition program - Diane Murrell, LCSW, Social Worker, Texas Children’s Hospital
3:30 p.m. - Questions and Answers
3:45 p.m. - Evaluation
4:00 p.m. - Closing Comments
CME/CNE details and accreditation statements (if applicable)
Baylor College of Medicine is accredited by the Accreditation Council for Continuing Medical Education (ACCME) to provide continuing medical education for physicians.
Baylor College of Medicine designates this live activity for a maximum of 14.00 AMA PRA Category 1 Credits™. Physicians should claim only the credit commensurate with the extent of their participation in the activity.
The presentation, Legal issues in the Transition from Pediatric to Adult-based Care, has been designated by Baylor College of Medicine for 1.00 credit of education in medical ethics and/or professional responsibility.
Texas Children's Hospital is an approved provider with commendation of continuing nursing education by the Texas Nurses Association - Approver, an accredited approver with distinction, by the American Nurses Credentialing Center’s Commission on Accreditation.
Texas Children’s Hospital is an approved continuing education provider for Social Workers through the Texas State Board of Social Worker Examiners. Social work continuing education units provided, 14 hours of continuing education including 1 hour of ethics.
Occupational Therapy and Physical Therapy
Contact hours (CCUs) have been applied for through TPTA and TOTA. Texas Children’s Hospital is an Approved Provider for the Texas Occupational Therapy Association. The assignment of TOTA CE hours does not imply endorsement of a specific course, content, products, or clinical procedures by TOTA.
Directions, Maps and Parking
MD Anderson Cancer Center Mitchell Basic Sciences Research Building
6767 Bertner Avenue | Onstead Auditorium, 3rd Floor
Houston, TX 77030
Parking is available in the McGovern Commons parking garage. Unfortunately, we are unable to validate parking. Parking is $12/day. Onstead Auditorium may be accessed from the McGovern Commons Building through the 1st floor breezeway.
You may wish to bring a sweater or light jacket, as the temperature in the auditorium can vary.
Houston Marriott Medical Center/Museum District
1730 Dryden Road
Houston, Texas 77030
Accommodations should be arranged directly with the Houston Marriott Medical Center/Museum District by calling 713.796.0080 or 800.228.9290. or go online (link below). Please identify yourself as an attendee of the 20th Annual Chronic Illness and Disability Conference: Transition from Pediatric to Adult-Based Care when making reservations to benefit from the special group rate of $159 (plus tax). A limited number of rooms will be available and have been reserved at the special rate on a space-available basis.
The deadline to receive the special rate is Monday, September 30, 2019, unless the room block has already been filled.
Araceli (AC) Romero
6651 Main Street
Houston, TX 77030
Videos of archived lectures presented at past conferences can now be viewed on YouTube: