Resources

• Texas Children’s Hospital Heart Transplant Education Handbook
  • English
  • En Español

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Additional Resources

Cardiac educational material

• Adult Congenital Heart Association: 919-861-4547
• American Heart Association: 800-242-8721
• Cardiac Arrhythmias Research and Education Foundation: 800-404-9500
• Cardiomyopathy Association
• Children's Cardiomyopathy Foundation: 866-808-CURE (2873)
• Children's Heart Foundation: 847-634-6474
• Children's Heart Link
• Congenital Heart Defects: 888-222-4649
• Children’s Helpers Educating: Reassuring and Uniting by Sharing (CHERUBS): 425-888-2166
• Congenital Heart Information Network (CHIN): 215-493-3068
• Heart of a Child Foundation: 310-375-6617
• Heart to Heart Texas: 888-475-2787
• Hypertrophic Cardiomyopathy Foundation
• Kids With Heart: 800-538-5390
• National Association of Rare Disorders: 800-999-6673
• Pediatric Cardiomyopathy Registry: 617-923-7747 Ext. 376
• Pediatric Heart Network
• Pediatric Heart Research Association: 513-759-0250
• Ronald McDonald House: 713-795-3500
• Scientific Registry of Transplant Recipients (SRTR): 734-665-4108
• Texas Heart Institute at St. Luke's Episcopal Hospital
• UNOS patient Web site 

Transplant-related educational material

• American Society of Transplantation: 856-439-9986
• American Organ Transplant Association: 800-373-1646
• Association of Organ Procurement Organizations: 703-556-4242
• Gift of Life Foundation: 813-855-7600
• International Society for Heart and Lung Transplant: 972-490-9495
• International Transplant Nurses Society
• Organ Procurement and Transplantation Network (OPTN): 804-782-4800
• Transplant Living by UNOS
• Transplant Recipients International Organizations, Inc. (TRIO)
• TransWeb: All About Transplantation and Donation: 734-998-7314

Fundraising organizations

• Children’s Organ Transplant Association (COTA): 800-366-2682
• National Transplant Assistance Fund (NTAF): 800-642-8399
• National Foundation For Transplants: 800-489-3863

Online support groups and organizations

• Little Hearts: Inc.: 866-435-HOPE
• Little Hearts of Texas
• It's My Heart: 713-334-4244 or 888-HEART-07
• Mended Little Hearts: 888-HEART-99
• The Mended Hearts: Inc.: 888-432-7899
• Transplant Living by UNOS

Financial and insurance resources

• Astellas Access Program for Prograf: 800-477-6472
• CellCept for Living
• Erika Kate Foundation
• First Hand Foundation: To help cover relocation for medical treatment costs only
• Genentech Transplant Access Services: 888-754-7651
• HealthWell Foundation: To help cover the costs of immune suppression medications only; financial qualification criteria does exist
• Heart Support of America: 888-430-9809
• To help cover the costs of cardiac-related medications only
• Kids Helping Kids Fix Broken Hearts
• Patient Access Network: 866-316-7263
• To help cover the costs of immune suppression medications only; financial qualification criteria does exist
• Project Joy and Hope
• Social Security Administration: 800-772-1213
• Texas Medicaid Program: 800-252-8263
• Transplants for Children: 210-949-1212
• United Healthcare Children's Foundation: 952-992-4459
• To help pay medical costs; financial qualification criteria does exist
• Women, Infants and Children (WIC): 800-942-3678

Organ donation

• Donate Life America: 804-377-3580
• Donate the Gift of Life
• Early Childhood Intervention (ECI): 800-628-5115
• Home therapy for children under age 3
• Life Gift: 713-523-4438
• Make a Wish
• Texas Medical Center: 713-795-0000
• United Network for Organ Sharing (UNOS): 804-782-4800