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Health Library

Beyond DiagnosisGathering information about your child’s cancer or blood disorder diagnosis is often helpful. Your doctors, social workers, and this website provides materials that may help while your child undergoes cancer or blood disorder treatment. The health care providers are your best resource. Other good sources of information are books and pamphlets. Your social worker can guide you to these reading materials.

Learning that your child has cancer or a blood disorder is overwhelming. Someone who has never experienced it before probably has little knowledge about childhood cancer or blood disorders.

Parents say that as time passes dealing with the cancer or blood disorder diagnosis becomes easier. Some parents believe this because they understand it better and because friends and family are lending their support. Talking to other families who have been dealing with a similar disease can also be a positive step. A strong support network for children and parents facing cancer and blood disorders spans the country, with local and national parents groups, support groups for children and their siblings, organizations that deal with education, and other branches.

Our social workers can be a primary source of help. They can provide a good orientation to the clinic, are aware of special problems facing young patients and their families, provide information on how to get help from outside community agencies, and address many other non-medical issues.

A  |  B   C  D  |  E  |  F  |  G   H  |  I  |  K  |  L  M  N  O  P  |  Q   R  |  S   T  |  U  |  V   W  |  X  |  Y  |  Z

A

About clinical trials

Acute chest syndrome in children with sickle cell disease

Acute lymphoblastic leukemia (ALL)

Acute myeloid leukemia (AML) and other myeloid malignancies

Advice from parents

Allogeneic stem cell transplantation

Alternative therapy for cancer

Angiosarcoma

Arteriovenous malformation (AVM)

Astrocytoma

B

Basal cell carcinoma

Bleeding disorder

Bone cancer

Bone marrow harvest

Bone marrow transplantation in children with sickle cell disease

Brain complications in children with sickle cell disease

Brain tumor

Burkitt's lymphoma

C

Capillary malformation-arteriovenous malformation (CMAVM)

Capillary malformation (port wine stain)

Causes of cancer

Cerebral cavernous malformation

Chronic myeloid leukemia

Clear cell sarcoma

Clear cell sarcoma of the kidney

Clinical trials

CLOVES syndrome

Conditioning regime for stem cell transplantation

Coping with a diagnosis of cancer in children

Cranipharyngioma

D

Dietary concerns during stem cell transplantation

E

Emotional aspects of a stem cell transplant

Ependymoma

Esthesioneuroblastoma

Ewing sarcoma

F

Fertility after cancer treatment

Fibroadipose vascular anomaly (FAVA)

G

Genetic cancer predisposition

Germ cell tumor, extracranial

Germ cell tumor, intracranial

Graft Verses Host Disease (GvHD)

H

Hemangioma

Hemolytic anemia

Hepatic hemangioma

Hepatocellular carcinoma

Hepatoblastoma

Histiocytosis

Hodgkin lymphoma

I

Inflammatory myofibroblastic tumor

Immune thrombocytopenia (ITP)

K

Kaposiform hemangioendothelioma (KHE)

L

Leukemia

Liver tumor imaging and interventional radiology

Liver transplantation in children with liver tumors

Long term effects of a stem cell transplant

Low grade glioma

Lymphatic malformation

Lymphoma

M

Managing alopecia in children

Managing mucositis in children

Medulloblastoma (Cerebellar PNET)

Megalencephaly-capillary malformation (MCAP) syndrome

Melanoma

MIBG treatment

Mixed vascular malformations

N

Nasopharyngeal carcinoma

Neuroblastoma

Neuroendocrine tumor

Non-Hodgkin lymphoma

O

Oncofertility for females

Oncofertility for females (Spanish version)

Oncofertility for males

Oncofertility for males (Spanish version)

Osteosarcoma

P

Pain management and children

Parathyroid tumor

Preparing for your infusion visit

Q

Questions to ask your child's doctor about cancer

R

Retinoblastoma

Returning to school after a cancer diagnosis

Rhabdomyosarcoma

Rothmund-Thomson syndrome

S

Salivary gland tumor

Sickle cell disease

Soft tissue sarcoma

Solid tumors

Splenic sequestration in children with sickle cell disease

Stem cell transplantation in children

Sturge-Weber syndrome

T

Testicular cancer

Thyroid cancer

V

Vascular malformations and hemangiomas

Venous malformations

W

What is cancer?

Wilms tumor

Words to know

Why is a stem cell transplant necessary? 

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