Living with AAOCA

Follow-up Care

Texas Children’s Hospital follows a clinical algorithm to determine follow-up care. 

  • Postoperative Short-term Follow-up
    • 1 week: surgical follow-up
    • 1 month: cardiology visit with ECG, echocardiogram
    • 3 months: cardiology visit with ECG, SESTAMIBI, CT (at the discretion of the surgeon and cardiologist)
      • No exercise restriction after third month visit if studies performed do not raise concerns
    • 6 months: cardiology visit with ECG
  • Long-term Follow-up
    • Pediatric cardiology follow-up every year
    • ECG every year
    • Echocardiogram every two years (optional)
    • Exercise stress test every 2 years (optional)

Lifestyle Changes

  • Patients awaiting surgical intervention or who refuse surgical intervention are restricted from exercise/sports activities.
  • Patients undergoing surgical intervention cannot exercise until 3 months after surgery, after which they can return to exercise/sports activities as long as they meet the following requirements:
    • They are asymptomatic
    • All the test findings are negative
  • Patients with low risk lesions that do not warrant surgical intervention are allowed to continue exercising.

Quality of Life

  • Patients and families affected with this diagnosis often experience increased anxiety and this may alter their lives.
  • Resuming exercise activities might be an important goal to achieve normalcy following a diagnosis of AAOCA, whether undergoing surgery or not.
  • Providing education and information about emerging data related to this condition may positively impact patients and families.

Outlook/adult management

Regardless of treatment, patients are followed up clinically at set intervals.