Living with AAOCA
Texas Children’s Hospital follows a clinical algorithm to determine follow-up care.
- Postoperative Short-term Follow-up
- 1 week: surgical follow-up
- 1 month: cardiology visit with ECG, echocardiogram
- 3 months: cardiology visit with ECG, SESTAMIBI, CT (at the discretion of the surgeon and cardiologist)
- No exercise restriction after third month visit if studies performed do not raise concerns
- 6 months: cardiology visit with ECG
- Long-term Follow-up
- Pediatric cardiology follow-up every year
- ECG every year
- Echocardiogram every two years (optional)
- Exercise stress test every 2 years (optional)
- Patients awaiting surgical intervention or who refuse surgical intervention are restricted from exercise/sports activities.
- Patients undergoing surgical intervention cannot exercise until 3 months after surgery, after which they can return to exercise/sports activities as long as they meet the following requirements:
- They are asymptomatic
- All the test findings are negative
- Patients with low risk lesions that do not warrant surgical intervention are allowed to continue exercising.
Quality of Life
- Patients and families affected with this diagnosis often experience increased anxiety and this may alter their lives.
- Resuming exercise activities might be an important goal to achieve normalcy following a diagnosis of AAOCA, whether undergoing surgery or not.
- Providing education and information about emerging data related to this condition may positively impact patients and families.
Regardless of treatment, patients are followed up clinically at set intervals.