A Mother’s Story — Raising An Infant With A Heart Defect: Part 4 Of 6

November 1, 2011


Our introduction into the amazing world of parenthood… and then our abrupt reality check in the form of a life-threatening congenital heart defect & the successful medical interventions taken at Texas Children’s Hospital which taught us to never take a day for granted. This is our story.

...continued from Part 3

15th week of life: Zeyd is talking so much more than usual, sometimes he seems to have ‘conversations’ with me and my husband. I still, and maybe always will, have a constant worry that Zeyd is breathing too fast or struggling a little when he is eating, and I am always feeling the back of his neck when he nurses because they say that is one place he may sweat first if he is struggling to eat. I cry almost every day just thinking about it, but I am getting a little better. I am an overly emotional person to start, so dealing with Zeyd's congenital heart defect and being a new mother just took quite an emotional toll on me, but Zeyd is worth everything. I think that the more appointments with the cardiologist we have, and if we continue to receive good news about his prognosis, then the better (hopefully) that I will feel that Zeyd's heart is continuing to grow and supporting him adequately. I hope I can worry less in the future, it would be so great.

17th week of life: This week Zeyd rolled back to front!! It is so crazy to see how quickly he is developing! At our appointment with different pediatrician, we learned that

his growth curve is steady and we got the okay to go out of the house, as long as we stay away from sick people of course. Spring is almost here so we have been waiting to hear that from the doctor for a while, yay!!

18th week of life: Since our last visit with Dr. Black when I was in panic mode, I have been having less stress lately as Zeyd has been doing very well. Our next appointment with Dr. Rivenes and another echocardiogram are scheduled for next week. I am so very much hoping and praying for good news to keep up this great feeling! I need that reassurance.

sticking out tongueDay 134: We had our appointment with Dr. Rivenes and got an echocardiogram done today. Zeyd was moving around a bit and acting a little fussy, but they were able to see that the pressures in, I think it is either his aorta or his pulmonary vein, were just slightly better and Dr. Rivenes was very pleased with his weight gain, breathing, appearance, and the sound of his heart. She wanted to get a really good picture at our next appointment, so she is going to do a sedated echo in the medical center at Texas Children’s during our next visit at the end of May.

19th week of life: Zeyd is more alert now, he is active, rolling both ways and trying to sit up by constantly putting his head forward when he is slightly reclined or even laying down. He is constantly looking around and observing everything.

6 months old: Zeyd weighed 16-lbs and 5-oz (approximately 30th percentile) and was 27.5-inches tall (approximately 80th percentile) so his weight gain and growth is really doing great and remains on a steady growth curve. He even started crawling!! WOW, now he is EVERYWHERE and into everything.

To be continued…

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