How Do Childhood Heart Patients Transition Into Adult Care?

March 29, 2011

Body

A couple weeks ago, we had our first Teen Transition Night in the Texas Children's Heart Center. The turn-out was great! We were amazed at how many teens and parents attended. Our guest speaker was Tommy Ho, former professional tennis player and the youngest player ever to play in the U.S. Open and Wimbledon. He gave a really inspirational talk about his life in tennis. His message was that we are each given a set of circumstances in life and it is up to each individual one of us to manage those circumstances to the best of our ability.

One mother called to thank us for this opportunity to start talking to her daughter about one day needing adult-trained doctors. She was so thankful that there were physicians at Texas Children's that would be able to help her transition to the Texas Adult Congenital Heart Disease Program.

 

I know that teens have a lot going on. But there are a few things that I hope the teens and their families were able to take away from Teen Transition Night.

  1. Know your heart. You are the one that has to live with it!
  2. Know your medications. What does each one do? What are the side effects of each one?
  3. Know your heart doctor. How do you contact his/her office if you need to make an appointment or have questions?
  4. A heart condition from birth is usually lifelong so it's important for your health to continue your medical care with a specialist in Adult Congenital Heart Disease.

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