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transplant services
Diagnosed at age 2,
cystic
fibrosis
Fourteen-year-old Chase McGowen of
Austin, the first patient in Texas to undergo a double lung-liver
transplant is progressing well after the surgery which was performed
at Texas Children's Hospital in early 2004. Chase, who has cystic
fibrosis, is one of fewer than 20 people in the world to have the
transplant.
“Chase has had an awesome year,” said
his mother, Carol. “While it has been a bit harrowing at times, he
is doing as well as anyone could expect at this point. We’re
thrilled to say that he is a normal, obstinate, stinky teenager.”
After a year of post-operative treatments, one hospitalization for
stomach surgery to control gastroesophageal reflux disease and
missing two months of school, Chase was able to ring in 2005 with
friends at a church campout, a first for him and his family. Now
back in school, Chase takes a number of medications and follows a
nutritional program that provides 4,000 calories a day.
“Although Chase has a new healthy liver and lungs, he still has the
gastrointestinal system of a cystic fibrosis patient,” said Carol.
“He is quite underweight, and he needs increased nutritional values
to boost his system.”
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If you would like to
share your life by being an organ or tissue donor, the first
step is to tell your family about your wishes. For information
and a donor card, call the United Network for Organ Sharing at
800-355-SHARE (74273) or visit
www.unos.org.
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Dr. George Mallory, chief of the
Texas Children's
Pediatric Lung Transplant Program, also is optimistic about Chase’s condition.
“So few patients have had double-lung and liver transplants that it
is hard to say how well Chase is doing compared to others,” said
Mallory. “But we are very, very pleased. His new organs are working
well, and the new liver seems to be supporting his gains from the
new lungs. He is growing and maturing like a typical teen. We’re
thankful that our worst problems are trying to get him to gain
weight and listen to his parents.”
Mallory went on to say he hopes to see Chase attend college and live
many years beyond.
“Thanks to Dr. Mallory and Dr. Saul Karpen, the Texas Children’s
physicians who monitor his lungs and liver, we have tremendous peace
of mind that everything is going to turn out all right for Chase,”
said Carol.
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